CEACR Speaker Series – Caring for the Caregivers in Community-Partnered Research: Considerations for Research Reciprocity

Date and time: Friday, January 27, 2023, 1 pm ET

Throughout the COVID-19 pandemic, professional scientists have turned to diverse frontline workers such as allied health professionals, community health workers, promotoras, home health aides, interpreters, community organizers, faith leaders, and other community and family caregivers to increase participation in research, especially in communities where trust has eroded. Community partners have guided professional scientists to integrate strategies for inclusive participation, language equity, and culturally responsive recruitment, retention, and dissemination. Those working on the frontlines have witnessed multiple crises, highlighted profound structural inequities, and experienced multiple losses in their communities. Beyond equitable compensation and provision of resources, what does meaningful support and care for our team members in community-engaged research look like? How do we strengthen reciprocity and honor the need to care for the caregivers?


Ann Carver, MSW, Doctoral Candidate, Health Equity Research Analyst, Southwest Interdisciplinary Research Center (SIRC), Arizona State University School of Social Work


Stephanie May, Ph.D., Executive Director, The Bridge at Austin Community Center

Richard James, MSLIS, MBE, Fontan Outcomes Network, Congenital Neurodevelopmental Outcomes Collaborative

Sara Gorman, Ph.D., MPH, CEO, Critica, Inc.

Portia A. Jackson Preston, DrPH, MPH, Associate Professor, Department of Public Health, California State University (CSU)-Fullerton