Resource Links
Advocating for Racial Equity in the US Healthcare System
Search for Resource Links by Section: Introduction | Case Studies | Patients | Providers | Resources
Introduction
Brief Timeline
JAMES MARION SIMS AND THE CONTROVERSIAL BEGINNING OF MODERN GYNECOLOGY
https://www.history.com/news/the-father-of-modern-gynecology-performed-shocking-experiments-on-slaves
TUSKEGEE EXPERIMENT: DECEPTION THAT CONTRIBUTED TO ONGOING HISTORICAL MISTRUST
https://apnews.com/article/tuskegee-study-ap-story-investigation-syphilis-53403657e77d76f52df6c2e2892788c9?utm_source=apnews&utm_medium=relatedcontentmodule
LAUNCH OF MEDICARE AND MEDICAID
https://www.healthaffairs.org/doi/10.1377/hlthaff.2021.01466
RACISM DECLARED A PUBLIC HEALTH CRISIS
https://www.cdc.gov/minorityhealth/racism-disparities/index.html
Case Studies
Patient Care
A Multi-Faceted Intervention Aimed at Black-White Disparities in the Treatment of Early Stage Cancers: The Accure Pragmatic Quality Improvement Trial
Structural Racism—A 60-Year-Old Black Woman with Breast Cancer
https://equalhope.org/wp-content/uploads/2021/11/structural_racism-NEJM-04_2019.pdf
Medical Devices
Racial and Ethnic Discrepancy in Pulse Oximetry and Delayed Identification of Treatment Eligibility Among Patients with COVID-19
https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2792653
THE FIGHT TO FIX A RACIST MEDICAL GADGET
https://gimletmedia.com/shows/science-vs/8whnlz7/the-fight-to-fix-a-racist-medical-gadget
Research
Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy
Counter the Weaponization of Genetics Research by Extremists
Telehealth
Racial and Ethnic Differences in Self-Reported Telehealth Use During the COVID-19 Pandemic: A Secondary Analysis of a US Survey of Internet Users from Late March
TELEMENTAL HEALTH THROUGH A RACIAL JUSTICE AND HEALTH EQUITY LENS
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3960052
Patients
Health & Safety Tips
The Cleveland Clinic and the Agency for Healthcare Research and Quality
https://my.clevelandclinic.org/patients/information/patient-safety#health-safety-tips-tab
Changes to Discuss
Worksheet: Life changes to discuss with your doctor
https://my.clevelandclinic.org/patients/information/patient-safety#health-safety-tips-tab
Questions to Consider
Questions to Ask your Doctor
https://my.clevelandclinic.org/patients/information/questions-to-ask-your-doctor
National Institute on Aging: What Should I Ask
https://www.nia.nih.gov/health/what-should-i-ask-my-doctor-during-checkup
National Institute on Aging: Taking Medicines Safely
https://www.nia.nih.gov/health/taking-medicines-safely-you-age
Your Health Information Privacy Rights From The Office for Civil Rights
The Harms of Being Labeled
The Harms of Being Labeled a Difficult or Non-Compliant Patient
https://www.rareadvocacymovement.com/post/the-harms-of-being-labeled-a-difficult-patient
Learn more about bias in electronic medical records
https://www.healthaffairs.org/doi/full/10.1377/hlthaff.2021.01423
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2788454
Vaccinations
Please visit the CDC website here
Vaccination Quiz
COVID-19 Vaccination INFo
https://www.cdc.gov/coronavirus/2019-ncov/vaccines/vaccine-benefits.html
Hepatitis A Vaccination INFo
hib Vaccination INFo
HPV Vaccination INFo
influenza Vaccination INFo
Meningococcal Vaccine Info
PCV Vaccine Info
Polio Vaccine Info
RV Vaccine Info
tdap Vaccine Info
https://www.cdc.gov/vaccines/hcp/vis/vis-statements/tdap.html
Varicella Vaccine Info
Helpful Resources
Fair health Consumer
Cost plus Drugs
Cost plus Drugs employer-sponsored programs
211 hotline
ScripTalk Talking Prescription Labels
https://www.envisionamerica.com/scriptalk-station-for-patients
ScripTalk participating pharmacies
Additional Readings
Dying of Whiteness: How The Politics of Racial Resentment is Killing America’s Heartland By Jonathan M. Metzl
Hospital: Man, Woman, Birth, Death, Infinity, Plus Red Tape, Bad Behavior, Money, God, and Diversity on Steroids By Julie Salamon
https://www.amazon.com/Hospital-Infinity-Behavior-Diversity-Steroids/dp/0143115367/
Killing the Black Body: Race, Reproduction, and the Meaning of Liberty By Dorothy Roberts
https://www.penguinrandomhouse.com/books/155575/killing-the-black-body-by-dorothy-roberts/
Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present By Harriet A. Washington
The Racial Divide in American Medicine: Black Physicians and the Struggle for Justice in Health Care Edited by Richard deShazo, MD, MACP
https://www.upress.state.ms.us/Books/T/The-Racial-Divide-in-American-Medicine2
Under the Skin: The Hidden Toll of Racism on American Lives and on the Health of Our Nation By Linda Villarosa
Providers
8 Reasons Patients Don’t Take Their Medications
research showing that patients don’t take their medications as prescribed about half the time
https://jamanetwork.com/journals/jama/article-abstract/204402
How Building patient trust Can support medication adherence
American Medical Association
Additional Study
How Using the Term “Non-Compliant” Keeps Providers From Partnering with Patients
Health Literacy: A Prescription to End Confusion
https://www.ncbi.nlm.nih.gov/books/NBK216032/pdf/Bookshelf_NBK216032.pdf
To Boost Outcomes, First Unlock the Power of Health Literacy
Advancing Health Equity by Avoiding Judgmentalism and Contextualizing Care
Consider Culture, Customs, and Beliefs
Religion, culture, beliefs, and ethnic customs
https://www.ahrq.gov/health-literacy/improve/precautions/tool10.html
Think cultural health Course
Ethnomed
The culture, language, and health literacy website
Tool 9: Address Language Differences
https://www.ahrq.gov/health-literacy/improve/precautions/tool9.html
Consider Culture, Customs, and Beliefs: Tool #10
https://www.ahrq.gov/health-literacy/improve/precautions/tool10.html
Communicate Clearly
Using clear oral communication strategies
https://www.ahrq.gov/health-literacy/improve/precautions/tool4.html
Tool 10: Consider Culture, Customs, and Beliefs
https://www.ahrq.gov/health-literacy/improve/precautions/tool10.html
Tool 5: Use the Teach-Back Method
https://www.ahrq.gov/health-literacy/improve/precautions/tool5.html
Key Communication Strategies
https://www.ahrq.gov/health-literacy/improve/precautions/tool4a.html
Communication Self-Assessment
https://www.ahrq.gov/health-literacy/improve/precautions/tool4b.html
Communication Observation Form
https://www.ahrq.gov/health-literacy/improve/precautions/tool4c.html
Brief Patient Feedback Form
https://www.ahrq.gov/health-literacy/improve/precautions/tool4d.html
Health Literacy Patient Survey
https://www.ahrq.gov/health-literacy/improve/precautions/tool17d.html
Tool 17: Get Patient Feedback
https://www.ahrq.gov/health-literacy/improve/precautions/tool17.html
Health Literacy and Patient Safety: Help Patients Understand
Communicate Clearly: Tool #4
https://www.ahrq.gov/health-literacy/improve/precautions/tool4.html
Use the Teach-Back Method
The teach-back and show-me methods
https://www.ahrq.gov/health-literacy/improve/precautions/tool5.html
Always Use Teach-Back! Toolkit
5-Minute Teach-Back Video
Health Literacy and Patient Safety
the full AHRQ Health Literacy Toolkit
https://www.ahrq.gov/health-literacy/improve/precautions/toolkit.html
Tool 12: Use Health Education Material Effectively
https://www.ahrq.gov/health-literacy/improve/precautions/tool12.html
Health Literacy Patient Survey
https://www.ahrq.gov/health-literacy/improve/precautions/tool17d.html
Use the Teach-Back Method: Tool #5
https://www.ahrq.gov/health-literacy/improve/precautions/tool5.html
Follow-Up With Patients
Follow-up is the act of making contact with a patient or caregiver
https://www.ahrq.gov/health-literacy/improve/precautions/tool6.html
Follow-up Instruction Form
https://www.ahrq.gov/health-literacy/improve/precautions/tool6a.html
Lab Results Letter
https://www.ahrq.gov/health-literacy/improve/precautions/tool11f.html
Follow Up with Patients: Tool #6
https://www.ahrq.gov/health-literacy/improve/precautions/tool6.html
Address Language Differences
Interpreter Services Posters
https://www.floridajobs.org/PDG/PostersforEmployers/IS%20Poster%2011×17.pdf
Tool 4: Communicate Clearly
https://www.ahrq.gov/health-literacy/improve/precautions/tool4.html#Tool4
List of Internet Resources
https://www.ahrq.gov/health-literacy/improve/precautions/list.html
Address Language Differences: Tool #9
https://www.ahrq.gov/health-literacy/improve/precautions/tool9.html
The Guide to Providing Effective Communication and Language Assistance Services
The Office Guide to Communicating with Limited English Proficient Patients
https://vtmd.org/client_media/files/2008_AMA_OfficeGuidetoLEPPAtientCare.pdf
Hablamos Juntos
Assessing Translation—A Manual for Requesters
https://www.rwjf.org/content/dam/farm/toolkits/toolkits/2009/rwjf37288
LEP.gov
The American Translators Association
The Certification Commission for Healthcare Interpreters
National Board of Certification for Medical Interpreters
MedlinePlus
Health Information Translations
I Speak Cards
Encourage Questions
Creating a shame-free environment
https://www.ahrq.gov/health-literacy/improve/precautions/tool14.html
Brief Patient Feedback Form
https://www.ahrq.gov/health-literacy/improve/precautions/tool4d.html
Health Literacy Patient Survey
https://www.ahrq.gov/health-literacy/improve/precautions/tool17d.html
Tool 5: Use the Teach-Back Method
https://www.ahrq.gov/health-literacy/improve/precautions/tool5.html
Questions Are the Answer
Questions Are the Answer Videos
Questions Are the Answer handouts
Questions Are the Answer online question builder
Encourage Questions: Tool #14
https://www.ahrq.gov/health-literacy/improve/precautions/tool14.html
Resources
ADDITIONAL REFERENCES
What Should I Ask My Doctor During a Checkup
U.S. Department of Health and Human Services. (2020, February 3). What should I ask my doctor during a checkup? National Institute on Aging. https://www.nia.nih.gov/health/what-should-i-ask-my-doctor-during-checkup
Taking Medicines Safely as You Age
U.S. Department of Health and Human Services. (2022, September 22). Taking medicines safely as you age. National Institute on Aging. https://www.nia.nih.gov/health/taking-medicines-safely-you-age
Recent Changes in Habits to Discuss with Your Doctor Worksheet
Worksheet 3 changes to discuss – National Institute on Aging. National Institute on Aging. (n.d.). https://www.nia.nih.gov/sites/default/files/2021-06/worksheet-changes-to-discuss.pdf
How to Talk with Your Doctor About Sensitive Issues
U.S. Department of Health and Human Services. (2020, February 3). How to talk with your doctor about sensitive issues. National Institute on Aging. https://www.nia.nih.gov/health/how-talk-your-doctor-about-sensitive-issues
Questions to Ask Your Doctor
Questions to ask your doctor. Cleveland Clinic. (n.d.). https://my.clevelandclinic.org/patients/information/questions-to-ask-your-doctor
Your Health Information Privacy Rights
U.S. Department of Health and Human Services: Office of Civil Rights. (N.d.). Your Health Information Privacy Rights. https://www.hhs.gov/sites/default/files/ocr/privacy/hipaa/understanding/consumers/consumer_rights.pdf
The Harms of Being Labeled a Difficult Patient
Martinez, A. (2022, May 24). The harms of being labeled a ‘difficult’ patient. RAM. https://www.rareadvocacymovement.com/post/the-harms-of-being-labeled-a-difficult-patient
ScriptTalk Talking Labels
Audible prescription labels: ScripTalk talking labels: En-vision america. Envisionamerica. (n.d.). https://www.envisionamerica.com/scriptalk-station-for-patients
Find a Participating ScriptAbility Pharmacy
Talking labels pharmacy: Find a participating pharmacy: En-vision america. Envisionamerica. (n.d.). https://www.envisionamerica.com/participating-pharmacies
Welcome to FAIR Health
Welcome to fair health. FAIR Health. (n.d.). https://www.fairhealthconsumer.org/
Mark Cuban Cost Plus Drug Company
Mark Cuban cost plus drug company. Mark Cuban Cost Plus Drug Company. (2022). https://www.markcubancostplusdrugcompany.com/
8 Reasons Patients Don’t Take Their Medications
AMA. (2020, December 2). 8 reasons patients don’t take their medications. American Medical Association. https://www.ama-assn.org/delivering-care/patient-support-advocacy/8-reasons-patients-dont-take-their-medications
Advancing Health Equity by Avoiding Judgmentalism & Contextualizing Care
Advancing Health Equity by avoiding judgmentalism and contextualizing care. (2021). AMA Journal of Ethics, 23(2). https://doi.org/10.1001/amajethics.2021.91
Health Literacy: Understanding Health Literacy
U.S. Department of Health and Services. (September 20, 2022). Health Literacy. https://www.cdc.gov/healthliteracy/learn/Understanding.html
How Using the Term “Non-Compliant” Keeps Providers From Partnering With Patients
Sinkfield-Morey, T. (2018). How using the term “non-compliant” keeps providers from partnering with patients. Creative Nursing, 24(3), 178–185. https://doi.org/10.1891/1946-6560.24.3.178
Challenging Non-Compliance
Keszthelyi, S. (2003). Challenging non-compliance. Journal of Medical Ethics, 29(4), 257–259. https://doi.org/10.1136/jme.29.4.257
Health Literacy: A Prescription to End Confusion
Institute of Medicine (US) Committee on Health Literacy; Nielsen-Bohlman L, Panzer AM, Kindig DA, editors. Health Literacy: A Prescription to End Confusion. Washington (DC): National Academies Press (US); 2004. 4, Culture and Society. https://www.ncbi.nlm.nih.gov/books/NBK216037
To Boost Outcomes, First Unlock the Power of Health Literacy
Robeznieks, A. (2023, January 31). To boost outcomes, first unlock the power of Health Literacy. American Medical Association. https://www.ama-assn.org/delivering-care/health-equity/boost-outcomes-first-unlock-power-health-literacy
Protect Yourself From Long COVID: Get Vaccinated
U.S. Department of Health and Human Services. (n.d.). Protect yourself from long COVID: Get vaccinated [Pamphlet]. https://wecandothis.hhs.gov/sites/default/files/2023-02/WCDT_LongCOVID_Poster_Engl_508c.pdf
Treatments for Patients at Risk for Severe COVID Illness
American Public Health Association. (2023, January 12). Treatments for patients at risk for severe COVID illness [Pamphlet]. https://apha.org/-/media/Files/PDF/topics/COVID/HHS/COVID_treatment_handout_treatment_for_patients.ashx
When to Get Medical Care for COVID
American Public Health Association. (2023, January 12). When to get medical care for COVID [Pamphlet]. https://apha.org/-/media/Files/PDF/topics/COVID/HHS/COVID_treatment_handout_get-care.ashx
ADDITIONAL READINGS
Health Disparities and Health Equity: The Issue is Justice
Braveman, P. A., Kumanyika, S., Fielding, J., et al. (2011). Health disparities and health equity: The issue is justice. AJPH: A Publication of the American Public Health Association, S1, S149-S155.
Race, Medicine, and Health Care in the United States: A Historical Survey
Byrd, W. M., & Clayton, L. A. (2001). Race, medicine, and health care in the United States: A historical survey. Journal of the National Medical Association, 93(3), 11S-34S. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2593958/
A Multi-faceted Intervention Aimed at Black-White Disparities in the Treatment of Early Stage Cancers: The ACCURE Pragmatic Quality Improvement Trial
Cykert, S. et al. (2020). “A multi-faceted intervention aimed at Black-White disparities in the treatment of early stage cancers: The ACCURE pragmatic quality improvement trial.” Journal of the National Medical Association, 112(5), pp. 468-477.
Dismantling Racism Works Web Workbook
Dismantling racism works. (n.d.). DR WORKBOOK. https://www.dismantlingracism.org/
Addressing Systemic Racism Through Clinical Preventive Service Recommendations From the US Preventive Services Task Force
Doubeni, C. A., Simon, M. S., & Krist, A. H. (2021, January 25). Addressing systemic racism through clinical preventive service recommendations from the US preventive services task force. JAMA Network, 325(7), 627-628.
The Legacy of the Tuskegee Study
Frakt, A. (2019). The legacy of the Tuskegee study. Harvard Global Health Institute. https://globalhealth.harvard.edu/the-legacy-of-the-tuskegee-study/
The Tuskegee Experiment 50 Years Later: A BET News Special Interview With The Associated Press Reporter Who Exposed It All (Part 1)
Gray, M. J. (2022). The Tuskegee experiment 50 years later: A BET news special interview with the associated press reporter who exposed it all (part 1). BET. https://www.bet.com/article/26kijz/jean-heller-interview-associated-press-tuskegee-experiment-part-1
The Tuskegee Experiment 50 Years Later: A BET News Special Interview With The Associated Press Reporter Who Exposed It All (Part 2)
Gray, M. J. (2022). The Tuskegee experiment 50 years later: A BET news special interview with the associated press reporter who exposed it all (part 2). BET.
https://www.bet.com/article/kxnjme/jean-heller-interview-associated-press-tuskegee-experiment-part-2
Racial Bias in Pain Assessment and Treatment Recommendations, and False Beliefs about Biological Differences Between Blacks and Whites
Hoffman, K. M., Trawalter, S., Axt, J. R., & Oliver, M. N. (2016). Racial bias in pain assessment and treatment recommendations, and false beliefs about biological differences between blacks and whites. Proceedings of the National Academy of Sciences, 113(16), 4296-4301.
Health and Race Disparities in America have Deep Roots: A Brief Timeline
Joyner, T., & Lee. J. S. (2020, April 20). Health and race disparities in America have deep roots: A brief timeline. Detroit Free Press. https://www.freep.com/story/news/local/michigan/2020/04/20/timeline-health-race-disparities/5145641002/
Racism in Medicine: Historical Foundations and Strategies for Advancing Health Equity
Manchanda, E. C. (2022, August 11). Racism in medicine: Historical foundations and strategies for advancing health equity. [Video]. American Medical Association Center for Health Equity. https://edhub.ama-assn.org/ama-center-health-equity/video-player/18714776
Dying of Whiteness: How the Politics of Racial Resentment is Killing America’s Heartland
Metzl, J. M. (2019). Dying of whiteness: How the politics of racial resentment is killing America’s heartland. Basic Books.
We are the Solution to Our Problem: A Brief Review of the History of Racism and Nursing
Moore, S. S., & Drake, D. (2021, Aug). We are the solution to our problem: A brief review of the history of racism and nursing. Women’s Healthcare. https://www.npwomenshealthcare.com/wp-content/uploads/2021/08/2021_WH-August_History.pdf
Case Studies in Social Medicine Structural Racism — A 60-Year-Old Black Woman with Breast Cancer
Pallok, K., Maio, F. D., & Ansell, D. A. (2019). Structural racism—60-year-old black woman with breast cancer. The New England Journal of Medicine, 380(16), 1489-1493.
Killing the Black Body
Roberts, D. (1998). Killing the Black body. Penguin Random House.
How We Fail Black Patients in Pain
Sabin, J. A. (2020, Jan 6). How we fail black patients in pain. AAMC. https://www.aamc.org/news-insights/how-we-fail-black-patients-pain
Hospital: Man, Woman, Birth, Death, Infinity, Plus Red Tape, Bad Behavior, Money, God, and Diversity on Steroids
Salamon, J. (2009). Hospital: Man, woman, birth, death, infinity, plus red tape, bad behavior, money, god, and diversity on steroids. Penguin Books.
The Historical Roots of Racial Disparities in American Health Care
Scheinman, T. (2022, April). The historical roots of racial disparities in American health care. Smithsonian Magazine. https://www.smithsonianmag.com/science-nature/historical-roots-racial-disparities-american-health-care-180979800/
Under the Skin: The Hidden Toll of Racism on American Lives and on the Health of Our Nation
Villarosa, L. (2022). Under the skin: The hidden toll of racism on American lives and on the health of our nation. Penguin Random House.
Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present
Washington, H. A. (2008). Medical apartheid: The dark history of medical experimentation on Black Americans from colonial times to the present. Mahogany Books.
What is Racial Equity? Understanding Key Concepts Related to Race
What is racial equity? (n.d.). Race Forward. https://www.raceforward.org/about/what-is-racial-equity-key-concepts
Structural Racism In Historical And Modern US Health Care Policy
Yearby, R., Clark, B., & Figueroa, J. F. (2022). Structural racism in historical and modern US health care policy. Health Affairs, 41(2), 187-194. https://www.healthaffairs.org/doi/10.1377/hlthaff.2021.01466
The Intellectual Roots Of Current Knowledge On Racism And Health: Relevance To Policy And The National Equity Discourse
Zambrana, R. E., & Williams, D. R. (2022). The intellectual roots of current knowledge on racism and health: Relevance to policy and the national equity discourse. Health Equity, 41(2), 163-170. https://www.healthaffairs.org/doi/10.1377/hlthaff.2021.01439
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